Chronicspoonie
Christin Miserandino
#lupus #fibro #health #hcsm #epatient #140conf blogger speaker #mom #spoonie hugger, lover of life and cupcakes. PR friendly Brand Ambassador facebook.com/bydls6,059 followers | Follow
Broken OfBritain
Non-partisan Disability campaign. Advocacy for people w/ invisible illness and/or physical & mental health conditions & Carers. ~Tweets by @queeniejelly4,540 followers | Follow
faithfamilyfibro
Used to be a liberal, independent, single woman - Now a conservative, christian, wife, mama, blogger and reviewer trying to manage life with fibromyalgia4,398 followers | Follow
Lupus Advocate
Lupus Warrior/ePatient Advocate/ #CMgr spreading my social media wings to help educate others on #health #epatient #s4pm #hcsm #lupus #140conf #socmed & #SLEYLB4,104 followers | Follow
jenni prokopy
writer; editrix of chronicbabe.com, for young women who live incredibly in spite of chronic illness; lover of all things orange and pink3,967 followers | Follow
Ashley Boynes~Shuck
Advocate living well with rheumatoid arthritis and chronic illness. Staying strong & emerging from pain! E-patient & anomaly. Forever hopeful. Always inspired.3,958 followers | Follow
Dancing with Pain
Dancing with Pain® offers a pioneering methodology for navigating through the physical, emotional, spiritual, and medical elements of dealing with chronic pain.3,442 followers | Follow
Maija Haavisto
journalist, author, medical/food/music/tech writer, translator, copywriter, artist, photographer, expat, plant lover, demoscener, vegetarian foodie with CFS/ME3,168 followers | Follow
Jo-Ann Colburn
Recently diagnosed with Lyme Disease after 9 years of being told I had RA (rheumatoid arthritis). Battling Lyme with the help of my husband and 3 boys.2,967 followers | Follow
stephintoronto
lover of champers,handbags,cupcakes,lingerie,all things fabulous, hater of migraines,mental illness,mean people. writes about everything2,938 followers | Follow
What The Jules
Reluctant Activist. Lupus, Fibro, Bipolar, Sarcastic. EDS Mom. Blogger. Podcaster. Say hi, don't be shy! #chronicallyawesome #chronicallyathome #health2,811 followers | Follow
Lisa Emrich
Patient Advocate and Blogger, Living with Multiple Sclerosis and Rheumatoid Arthritis, Musician, Educator, and writer for HealthCentral.com2,713 followers | Follow
Rosalind Joffe
The Chronic Illness Career Coach.Seasoned career coach & author living w/chronic diseases:MS,UC colectomy/etc.M w/2 grown daughters & goldendoodle2,679 followers | Follow
Steven Sumpter
Dislikes ConDem government. Likes science and technology. Rants and swears a lot. Has M.E/depression/diabetes. Not as nice as he wants to be.2,663 followers | Follow
Marja Ernst
Student of life, lover of music & the music biz, accounts payable clerk, and sister of nine. Living with, but not defined by ME/CFS.2,555 followers | Follow
Felicia Fibro
I’ve had fibromyalgia for 11 years and am on a quest to raise awareness and help others by sharing information and staying positive.2,548 followers | Follow
Annie Martin
Just a girl, trying to bring about an awareness of what it is like to struggle with severe chronic illness at a young age.2,300 followers | Follow
Julianna Mosele
Adoptive Mom, Conservative Christian,blogger,Breast Cancer Survivor, MS/Fibro sufferer,GF,spoonie,foodie,Mamavation sista,and a really nice girl!!2,112 followers | Follow
Heather Laurie
Christian wife/mom of 5 kids & 3 angels! We are fighting for cure for Mitochondrial Disease! Homeschooler/Speaker/Writer Lovin' Life!2,026 followers | Follow
Debbie Deboo
Creator of the award winning GlamSticks, Animal Rights activist, vegan and spoonie. Trying to change the world one person at a time!2,015 followers | Follow
CHRONICLYsILLy
Founder of CHRONICLYsILLy...Chronically Hilarious...I'm Simply complex and perfectly flawed... Have you had your daily dose today? #lupus #spoonie #awareness1,983 followers | Follow
Jessica K. Smith
Writer, Marketer & Founder of Living Well With Epilepsy, an online resource for individuals and organizations. http://cafepress.com/livingwellwithepilepsy/1,852 followers | Follow
Rebecca Bradley
Working on my second crime novel while the first is out on submission. Holding down a day job, living life with Ehlers Danlos Syndrome. Still time to tweet!1,796 followers | Follow
☮ amynluv ☮
#Spoonie #EhlersDanlos #EDS #POTS #dysautonomia #Fibro #Fibromyalgia #Blogger #LGBT #Writer #Feminist♀ #Prochoice #Catholic-#Pagan #Witchcraft #Hippie☮1,744 followers | Follow
JeannetteLaframboise
Still fighting my Human Rights case after workplace injury...Just want my nursing job back!!! In the meantime, entering contests & WINNING!1,694 followers | Follow
Sandy Robinson
Author of popular CFS & Fibro. website - http://www.fightingfatigue.org. Submit your inspirational story to http://www.fightingfatigue.org/fbchallenge.1,657 followers | Follow
Margo Milne
I write, sometimes for money. Full time #spoonie, part time wheelchair user. Lover of skulls, medicine geek, Gooner. Held hostage by a cat: please send help!1,572 followers | Follow
Adrielle de Viridian
❊A mind alive with wriggling rainbow fishes!・Amazin・Arty・Animation Student・ME/CFS/FMS/EDS Warrior・BBSc・X-CircusGal・X-PuzzlePirate❁1,476 followers | Follow
Jen Turner
I am a 23yo woman with fibromyalgia, ME/CFS, MPS, Raynaud's, & asthma. Recently dx'd with possible lupus. I'm just trying to get thru life by loving and living.1,424 followers | Follow
Dana Baker ▐ ●▼■
A pointless nostalgic who's fond of hats, movies, naps, puns, the ocean. 24/7 pain w/daily headache, migraines & Fibromyalgia. Thyroid cancer survivor. Yay, me!1,381 followers | Follow
Michael A. Weiss
Chronic Illness “Patient Expert.” 48-year old w/ Crohn's Disease 4 25 yrs. 200+ Hospitalizations/16+ Surgeries. Author, Podcaster & Blogger 2 HELP Patients.1,381 followers | Follow
MyLifeWithFibro
I'm Kate. I have fibromyalgia and I am grateful for it. (Yes, you read that right.)1,380 followers | Follow
Laura Ann Dunks
25, writing novel about teen w/ ME/CFS. I have ME/CFS + Crohn's. LDN helped me out of bed. I fight for human + LGBT rights. I'm doing an open university degree.1,363 followers | Follow
Dorian |_|)
coffee for the soul made w/warmth, wisdom, wit & quotable grokking;#spoonie nearly ended by #Endo;wife of @DavidWRhodes;mum to @ShadowSillybutt & @PaganPuppycat1,359 followers | Follow
Suzanne Moon
Mom of 2, Sober Chick, Zombie geek, #Spoonie. Fibro/Degenerative Disc Disease, Dysautonomia1,326 followers | Follow
Raven Xanadu
Programmer, reiki practitioner, Pagan, and fibro sufferer. Doing my part to piss off Religious Right. #p21,282 followers | Follow
Suzanne M.
I don't march to the beat of a different drummer, I dance! Living w/ #EDS, Ehlers-Danlos Syndrome, best way I know how #1dayatatime.1,263 followers | Follow
@summerplum
Massage therapist turned professional patient, dealing with chronic illness & pain. Live with EDS, Fibromyalgia, migraines, crazy allergies & more.1,233 followers | Follow
Rachel Groves
Artist. Chronically ill with ME/CFS (taking LDN). Chronically happy. Married to @grovesmedia1,227 followers | Follow
Kelli A Ellis
30-some chick w/ FMS, CFS, Endo, & A puppy. Into soccer, lax, hockey, coin/plushie collections, my faith & all things web. No interest in politics or stupidity.1,216 followers | Follow
LightChronicles.info
Disabled people sharing good information. Producers of Technical Difficulties weekly on @resonancefm . Wear your scars with pride.1,208 followers | Follow
autoimmunelife
I am a 25 year old female who has multiple chronic illnesses, infertility and a baby loss momma who blogs about it!1,202 followers | Follow
Sarah Rice
23. Psych major. People person. Caring. Animal lover. Insomniac. Chronic worrier. I have Fibromyalgia but it doesn't have me. I love @ComedianOfReiki #Spoonie1,185 followers | Follow
Deborah Braconnier
Freelance Writer.Diagnosed With Autoimmune. Covering Health/AI Diseases and Sports - NFL, Broncos, Tim Tebow, Jets, Cubs, Curling, PGA and Olympics1,159 followers | Follow
Wightcat Wools
Amanda. Entrepreneur & Owner of Wightcat Wools www.wightcatwools.com for lots of lovely knitting yarns, patterns & felting supplies1,154 followers | Follow
Darren Dale
A Photographer, Writer and geek in the Atlanta, GA area, currently struggling with CFS/ME and Fibromyalgia. I shoot portraits, fine art, and weddings/events.996 followers | Follow
Dr Chris Moore
Medical doctor, writer, Western Medical Acupuncture therapist, fibromyalgia sufferer, die hard optimist973 followers | Follow
Misty Dawn
partially sighted,mildly HOH,Christian,ace,INFJ,synesthete,public radio nut,newsie,MVPSer,radio amateur,Greek/Latin by day,air/space by night,#PolishPride939 followers | Follow
Beyond Empathy
I am all i can be, I am my own strength, weakness, compassion & insight. I am #ME #spoonie #Fibro. When you are brokenhearted, I am close to you.924 followers | Follow
Lisa Gonzales
I AM that I AM; Truth Seeker, Living with Dysautonomia, Lisa's Hope non-profit founder841 followers | Follow
Diana P. Lead
Ex-archaeologist now living with chronic illness (pituitary disease, ME/CFS & more). Working on improving my QOL (& the lives of others) by writing/blogging.831 followers | Follow
Brynn Hultquist
I'm a mom to 5, afflicted with Lupus, fibro, RA & Type 2 diabetes living in a made-for-tv-movie kinda life...I AM a Chronic Badass ;)817 followers | Follow
Julian Yon
When the revolution comes, I'll be the one in the wheelchair trying to remember my own name. 3072D/3C011D85719 followers | Follow
Leigh James
Full Time Spoonie & Fibromite. Twisted Sense of Humour. BE WARNED - Its Chaos in my head, & I aint gonna tidy up 4U. Photography Addict.676 followers | Follow
nerdynurse
Wife, Mom, Christian, Fibro/CFS/ME etc., Disabled Nurse, Teacher; Technophile, Amateur Artist, Love to learn, tired of hurting & being tired, stubborn.661 followers | Follow
Juliana Joie
Love to compost garbage into flowers as an Author, Sassy Inspirational Speaker, Loving it All Coach, and Enthusiastic Supporter of Your Dreams. YOU MATTER.659 followers | Follow
Sarah Bellany
I have a chocolate problem. A labelling addiction and am suffering from severe ocean-life withdrawals. Apart from that I am your average M.E. sufferer.658 followers | Follow
Helen Thomas
Self employed artisan, activist, aspiring writer, MS'er, unashamed geek and huge Legend of the Seeker fan. Down with the coalition!645 followers | Follow
Monique Millender
I'm married to the best hubby ever! I'm a chica dealing w/infertility, fibro, Lupus & seizures. But, tomorrow's a new day, and it all could change in a snap!620 followers | Follow
Amanda Gibson
Geek, programmer, gamer, education student, lover of all things nerdy, popculture junkie, #spoonie suffering from #ra, #oa, #osteoporosis, #asthma & #scoliosis608 followers | Follow
Peachy Pains
Ankylosing Spondylitis survivor. Event Chair, Denver Arthritis Walk & Social Media Chair for Nt’l Committee on @arthritis_org602 followers | Follow
Living life from bed
30 something female. 90% bedridden for 14yrs due to POTS/EDS/FIBRO and more. I have managed to achieve a great deal despite it all. Check out my blog for info.537 followers | Follow
crazyknitter
Wife to @J_Gilmour ,Mother of 3,Bipolar,OCD knitter nature lover camper fibro & CFS & IBS Sci-Fi fan #LLAP #spoonie526 followers | Follow
MissNikkiAnn
Writer/Researcher. I advocate awareness of Dysautonomia, Postural Orthostatic Tachycardia Syndrome (POTS), Gastroparesis, Invisible/Chronic Illnesses522 followers | Follow
Crystal Blair
23, married, and stay at home mom of one..loves music, theater and tv..sufferer of fibromyalgia which sucks520 followers | Follow
Jan Cooper
NOT the Atlanta DJ jcoop, instead I'm a tweeter of random thoughts about fiber, fibromyalgia, and other things elsewhere known as coopcomp or fpfibers502 followers | Follow
OhWhatTheFog
40ish with fibro and RSD. New food allergies thrown in to make things fun. I have a bit of a potty mouth when in pain. http://ohwhatthefog.tumblr.com/493 followers | Follow
Maggie Deegan
30 year old lupus warrior, fibro-haver divorcee, student, radical lefty free spirit fatass. working on being a truly joyful person.482 followers | Follow
Denise Esterly
Spondylitis and Fibromyalgia sufferer. Remember that within all the negatives you can always find a positive! keep looking! #negative2positive plz :)479 followers | Follow
Aviva Brandt
Chronically ill mom trying to figure out life, the universe and everything465 followers | Follow
Stacey Lynn
Interstitial cystitis (IC)/SLE/RA/JRA/fibro/uveitis/autoimmune, #LAKings & beach loving family. And I crochet when my hands let me. Photos by @ReneeBowen452 followers | Follow
chronicchick
Mom to a Beautiful Teenage Daughter, lover of life,sewing,dogs crocheting, writing,and reading. Survivor of Lupus, Fibromyalgia, and other side dishes.441 followers | Follow
Shanon Niles
Wife, Photographer, Artist, Dreamer and Patient to Many Doctors..have been dealing with autoimmune issues for many years. Check out my blog!414 followers | Follow
Wacky Lisa
Extremely shy. Don't say much as I type responses and delete them. I have a thing for zebras and leave nose prints on my screen.390 followers | Follow
Dorie Bernstein
Varied interests, many of the geeky variety. 1/3 of library is made up of origami book.389 followers | Follow
Crystal Taylor
Im haunted, an energy giver/taker, and Spoonie. I luv 2 travel & love my papillon! See my Fibro photojournal: www.facebook.com/crystal.m.taylor386 followers | Follow
POTSawareness
Sometimes I wish my chronic illness had a different name -- one that wouldn't mislead people into thinking I'm stoned or obsessed with kitchenware.369 followers | Follow
Barbara S.
Massage Therapist & Health Coach | Mom & Grandmom | Lucky Wife | Living with RA363 followers | Follow
REformed annon girl
I'm just a girl who is a REformed Christian trying to live a biblically sound life whilst battling chronic pain, illness and disability...oh and I'm random!351 followers | Follow
Tricia (Tendo)
UK, 51, married. Atheist. Love laughing, animals, nature, music, Italy & Turkey.347 followers | Follow
Unquantified
I am an unquantifiable existence. An autistic twenty-something year old trapped in a failing body. (Dysautonomia, Mast Cell Disorder, EDS, Brain Injury, Mito)346 followers | Follow
Tamara van Haarlem
Dutch girl, crazy, loves writing, painting, playing the cello, metal and programming. Struggling with HMS/EDS. Spoonie.333 followers | Follow
LannieintheLymelight
self-proclaimed politics-, sports-, current events- & communications-junkie, living with and surviving Myalgic Encephalomyalitis, Chronic Lyme Disease and NIDS331 followers | Follow
nicole hudak
My names Nicole. i was recently diagnosed with P.O.T.S i would like to find out more and raise awareness. i love making new friends328 followers | Follow
sheppeyescapee
323 followers | Follow
Tricia Carter
I was born with Crouzon's and Apert's. I deal with Chronic Pain and Chronic Illness. Go to http://chronicillnessandfriends.webs.com and read more about me.307 followers | Follow
Eme' Savage
Author, stormchaser, small business owner, painter, super geek and someone you should know. My super powers are Common Sense and Will Power.295 followers | Follow
Dysautonomia Intl.
276 followers | Follow
Allison Mackewich
276 followers | Follow
George Romaka
I'm unapologetically, positively, unabashedly, happily, simply myself.271 followers | Follow
JustRuth IsFine
I am a wife, mother, minister,aunt,and daughter. I refuse to be my diagnosis, and I always try to be positive- don't always make it, but I always try. :)258 followers | Follow
Dolenciana
Spoonie suffering from many chronic illnesses including Hypothyroidism, Ankylosing Spondylitis, Sjogren's, Fibromyalgia, Polyneuropathy, ME/CFS and Depression256 followers | Follow
Sabrina Shields
20 Future best selling author, sports lover, owner of my branding company, singer, I have cerbral palsy looking to start a foundation for cp research248 followers | Follow
Robert Carswell
Artist based @TheGreatCentral Gallery & Studios in Leicester. Sculptor, painter & photographer. Works with people places & disabilities, including my own.244 followers | Follow
Amanda Carson
Fibromyalgia and ME/CFS sufferer just trying to live each day to the fullest!218 followers | Follow
Annie Manning
Mommy, wife, photographer, designer ... trying to live with POTS and NCS. This is my personal Twitter account, not business.217 followers | Follow
buddhacanvas
artist living with chronic illness, lives on chocolate and bacon, pokes badgers with spoons206 followers | Follow
Amy Longabaugh
Living an optimistic, deliberate and happy life with all the mountains a chronic, life-threatening illness puts in my way.205 followers | Follow
Ryan Slicer
Student, musician, nerd, #SC2 & PC gamer, amateur dog trainer, #Caps #Redskins fan, speaker of sarcasm, seeker of embarrassing moments. Chronically ill #Lyme.203 followers | Follow
Rachel Lundy
Wife to @WillCLundy. Mommy to William and Adelaide. Servant of Christ. Suffering from dysautonomia. Living with joy. Filled with hope. Depending on grace.202 followers | Follow
Allison Jacobs
Californian/NYer. Music fiend. Chronic Pelvic Pain+Autoimmune patient (#spoonie). Aspiring everything. Engaged to the love of my life @OMilligan!201 followers | Follow
Mommycable
The adventures of your not so average soccer mom dealing with the chronic illness know as POTS and EDS type 3. Oh yeah I also had RNY surgery done :)193 followers | Follow
Lyla Lobdell
I was diagnosed with P.O.T.S. a form of Dysautonomia that has no cure or definite treatment due to lack of awareness&research.I'm trying to raise more awareness186 followers | Follow
Tamara L. DeGray
Spoonie. Student. Activist. Blogger. Writer. Poet. Reader. Knitter. Friend.183 followers | Follow
Marta K. Jones
Happily married; book reading; world traveling; tofu eating; Broadway singing; POTS, PCOS & Endometriosis surviving; Unitarian Universalist finding my way!182 followers | Follow
Katharine U
Hoping to recover v v v soon from ME/CFS and consoling myself with chocolate in the meantime.....176 followers | Follow
=^oo^= Karen
Chronic spoonie, lots wrong. ESA stopped by this inhumane government. Preparing for dialysis. Each day is tough xx154 followers | Follow
Kerry Dodd
I have Fibromyalgia. I'd like to reach out to others in need or living with chronic pain. Together we can change the world :-D128 followers | Follow
Dysautonomia Journey
Dysautonomia is much like a spy. It's there but you can't see it. But when it flares it's ugly head, you know it's been lurking in the shadows!!!126 followers | Follow
Holly Ruggeri
Mother, Wife, Domestic Engineer, Diagnosed with Ehlers Danlos Syndrome & daily trying to cope. God is good!125 followers | Follow
What's in a name?
Married, disabled but working, big fan of puppies and kittens, bitter cynic, clinically cheerful (for reals.)124 followers | Follow
Little Teapots
Learning to deal with POTS syndrome and other fun disasters. I tip over...frequently.110 followers | Follow
Jane Stoops-Smith
Links to information Jane finds interesting or helpful in her quest to understand dysautonomia and increase the quality of her life.107 followers | Follow
Katie Kangas
Always thinking big, living with Dysautonomia, Ehlers Danlos Syndrome, fighting for better healthcare and independent living :)99 followers | Follow
Miranda Powell
I'm 28, wife, and mother of 2 little girls. I was recently diagnosed with dysautonomia. I am a musician and I sing in the worship ministry at church.92 followers | Follow
Masto Mama (Carla)
I'm a 35 yr.old Christ-following, coffee-drinking, blog-designing, beach-loving, homeschooling Mama of 2 and wife to Tim living with Mastocytosis.86 followers | Follow
Michelle Tjernstrom
'Courage doesn't always roar. Sometimes courage is that little voice at the end of the day that says: I'll try again tomorrow.' -- Mary Anne Radmacher81 followers | Follow
Jamie Young
Recently married in October 2011 and am a #fibro surviving Paralegal #spoonie for a Midtown GA Law Firm that I love working for!78 followers | Follow
cjaketrench
Mother of 3, will be a grammy in May.I have CFids/ME, Fibromyalgia, P.O.T. Syndrome and some other lovely things, but I am smiling.75 followers | Follow
Amy Swanson Campbell
Mom of 2 wonderful children, love all things involving creativity, crossword puzzles, couponing, Pugs, and Boston Terriers.63 followers | Follow
Ann Dockery
My 6 yr old daughter was born with a RARE, INCURABLE, LIFE THREATENING disease called MASTOCYTOSIS. My life revolves around raising awareness for this disease.63 followers | Follow
Colleen Miller
Married to best man in the world, have 4 kids and I have Mastocytosis recently found spindle mast cells in my bone marrow..I am completely crushed for my kids48 followers | Follow
Jane Stoops Smith
17 followers | Follow
Does it Hurt
12 followers | Follow
Tags:
cancer disability arthritis pain medication headaches multiplesclerosis anxiety insomnia lupus fibro chronicillness dysautonomia spoonie spoonies teamspoonie invisiblediseases cfs eds lyme chiari mitochondrial mastocytosis fatigue
